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DEBRA Worldwide

The first DEBRA group was founded in the UK by a group of parents whose children were affected by Epidermolysis Bullosa (EB). The original aims of the charity were to stimulate knowledge of, and interest in, EB for the benefit of those with the condition and their families and to fund medical research into EB. From these humble origins DEBRA has grown significantly with DEBRA groups now having been established in about 40 countries around the world. DEBRA International is an umbrella group whose members are the national associations representing people with EB in their countries. All member groups are autonomous, choosing to work together on matters of common interest. Europe, North America and Australasia are well represented amongst the member groups and there is a growing membership in Central and South America, Asia and, to a lesser extent, Africa.*

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  * Borrowed from DEBRA International website

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