Who is DEBRA Canada?

DEBRA Canada was formed in 1998 by Ontario resident Fran Molinaro (Founder), who decided to form a Canadian chapter after the birth of daughter, Deanna. Today, the organization has evolved into a volunteer Board of Directors consisting of 11 people who meet monthly to fulfill their objectives, which include patient programs, education, and the creation of awareness about this rare disorder.   DEBRA Canada is a voluntary, registered, non-profit organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians' awareness of this challenging disease.   DEBRA Canada is the only organizational body in Canada exclusively committed to the care and support of families affected by EB and to improving their quality of life.  

 

The first DEBRA chapter was founded in the UK by a group of parents whose children were affected by Epidermolysis Bullosa (EB). The original aims of the charity were to stimulate knowledge of, and interest in, EB for the benefit of those with the genetic disorder and their families, and to fund medical research. From these humble origins, DEBRA has grown significantly with DEBRA groups now established under the umbrella of DEBRA International in over 40 countries around the world.

 

DEBRA Canada is committed to providing the best quality of life for families and individuals affected by EB. The generosity of our supporters enables us to achieve our mission and purpose.

DEBRA Canada Fact Sheet