Get Adobe Flash player

News & Events

Hello and thanks for stopping by. Come back here often for Breaking News and Updates.

DEBRA International Announces…

Lotus Tissue Repair Announces Support of First International Patient Registry for Epidermolysis Bullosa…

North Shore News piece on EB family

http://www.nsnews.com/health/little+girl+shed+skin/6177302/story.html#ixzz1myOCkU8T

Rare Disease Day video

March 18th AGM Details…

March 18th 2012

Click here to see the Announcement and Form

CSPA Report Card On…

Click here to see the CSPA Report Card On…

2012 DEBRA International conference – in TORONTO

September 13-16, 2012 – start making plans now!

CN TowerDEBRA Canada is proud to announce that the DEBRA International 2012 Congress will be held in the cosmopolitan city of Toronto, Ontario.  Toronto is home of the country’s primary multidisciplinary EB clinic. DEBRA Canada President, Gena Brumitt, will co-chair the conference with Dr. Elena Pope, Head of Pediatric Dermatology at the Hospital for Sick Children.  An advisory panel is presently being assembled.

The conference dates are set for September 13-16, 2012. A patient care conference will take place on the 13th, and EB families are welcome to register for the entire conference or just attend the one-day patient care portion. All conference attendees will receive a free ticket to the Royal Ontario Museum, and the conference will open with a Canadian First Nations smudging ceremony.

Citizenship & Immigration Canada has been notified of our international event. Please see this website for information about visiting Canada: www.cic.gc.ca/english/resources/publications/meeting.asp.  Check the list of countries to see if your visit requires a Temporary Resident Visa. If you need a letter of invitation to support your TRV, please email ehoyos@debracanada.org with your contact information, and DEBRA Canada’s administrative assistant, Erin, will send one promptly. Further details about the venue, agenda, hotel information, and official registration will be available soon, through a new website created specifically for the congress.

We welcome you all!

Toronto (Ajax) Butterfly Tattoo Fundraiser

To view our fundraiser’s media coverage go to this link http://toronto.ctv.ca/?video=601354 and go to the 15:10 minutes.

 

To read the online newspaper article on the Butterfly Tattoo (Ajax) fundraising event click here:

http://www.durhamregion.com/news/article/1280121–ajax-tattoo-artists-ink-their-support-for-fundraiser

 

 

MuchMusic VJ Liz Trinnear

Liz, who has EB Simplex, has been interviewed by TORO Magazine

Here is her video: MEET LIZ TRINNEAR

Gallery: Liz’s exclusive TORO Woman pics

 

You can also follow her on her own MuchMusic webpage LIZ ONLINE

IEBAW 2011

Stoney Creek Halloween Party 2011

Unfortunately we had to cancell this year Halloween Party…
For more information contact Erin at : ehoyos@debracanada.org

See you all next year!!!