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Vancouver Halloween Party 2011
“It was a raging success! I was so pleased, all of the families that RSVPd came, so four plus mine. Dr. Prendiville, another derm and a hemotologist who works with the 3 RDEB kids, plus the nurse who helped me all came out as well. The clown was fabulous and everyone enjoyed connecting – some for the first time.”
EB Families Visit the ROM Free of Charge
Thanks to the generosity of the Gopalani family, a fund has been set up at the Royal Ontario Museum (ROM), which gives people affected by EB and their immediate families the chance to experience one of Canada’s premier cultural institutions at no charge. Contact Erin Hoyos, Administrative Assistant for DEBRA Canada (ehoyos@debracanada.org), to arrange for your free tickets.
To make a tax deductible contribution, kindly visit: www.rom.on.ca/donatenow and under the “My Gift is Towards” drop-down menu option, please select the “Gopalani Family Fund.” Every $10.00 raised enables one child with special needs to visit the ROM. Thank you for your support!
New bracelet for EB
| New limited edition bracelet | |
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LeahChristina has created this limited edition bracelet with the goal of raising awareness about Epidermolysis Bullosa (EB). When you purchase this bracelet, 20% of the proceeds help Canadians with EB. This bracelet is handmade from elastic cord, gemstones and sterling silver, and is available in 8 different colours! No clasp needed just slide it over your hand. It will fit anyone with a 7.5 inch-8.0 inch wrist.
Only available while supplies last.
$35.18 each
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Remembering Alice Ervin
“The Board of Directors of DEBRA Canada is deeply saddened by the passing of our beloved fellow board member, Alice Ervin. She meant a great deal to all of us. Our hearts and prayers are with Alice’s family.”
http://www.ottawasun.com/news/ottawa/2011/03/22/17714471.html
AGM 2011
Our AGM is coming on March 27th 2011.
Click here to download our AGM Invitation/Nomination Form
Anton has found a family
We are ecstatic to learn that little Anton (RDEB) from Russia is in procedure of adoption!
Or you can visit Anton’s facebook page… where you can follow his progress. Help Anton
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Anton was born with EB and is looking for a family who will love and care for him.
Click here to read Anton’s story and see a video.
You can follow Anton on his Facebook page.
Click here to see How to Adopt a Russian child (Government of Canada)
Adoption in Russia – More information for adoptive parents
Fall 2010 Newsletter
Just a little note to let you know that the Fall 2010 Newsletter is finally online!!!
You can download it right here
Awareness Night October 13th
We would like to invite you to an evening of getting to know DEBRA Canada and more about Epidermolysis Bullosa (EB).
Event Details
When: October 13th 2010, 7-9 PM
New Location
Where: CMA Office – Professional Development Institute (PDI), 25 York St, Suite 1100, Toronto
Cost: $15.00 per ticket
Method of payment: Cash or Cheque made payable to “DEBRA Canada”
Dress Code: Business Casual
To purchase tickets or for more information please contact,
Misbah Gopalani
Treasurer, Director
mgopalani@debracanada.org
OR
Shoaib Gopalani
Director
sgopalani@debracanada.org
Minnesota BMT Trial
Minnesota BMT Trial – The Early Results
The long awaited report on the bone marrow transplant trials at Minnesota was published. Here is the commentary prepared by the DEBRA International Research Manager, Dr Clare Robinson, which I hope you will find of interest.
Click on the pdf link to read the report.
