i have eb since birth,with the usual blisters etc. my case is mild compared to most i am sure,however,i have been doing a little online research. You probably know already about the research at the univercity of minnesota into eb.In case you don’t, i have been trying SULFORATHANE ointment and capsules.I cannot believe the results,i urge you to try it. sincerely, barry wilson…………barrywilson@shaw.ca
You have created a wonderful support system for EB and I greatly appreciate this as I suffer from this disease as well. I am hoping to transfer my research career into studying this disease but am actually not well enough informed as to who is doing the research in Ontario. Could you give me a potential list of research facilities studying this for me? I did hear of some work being done at Sick Kids in Toronto but haven’t heard much about them lately.
Thank you very much for your time and the time you take to make people aware of our discomfort.
Have a wonderful weekend,
Cat McFadden
i have eb since birth,with the usual blisters etc. my case is mild compared to most i am sure,however,i have been doing a little online research. You probably know already about the research at the univercity of minnesota into eb.In case you don’t, i have been trying SULFORATHANE ointment and capsules.I cannot believe the results,i urge you to try it. sincerely, barry wilson…………barrywilson@shaw.ca
Hello Barry,
My son is almost 24 months old, and he has an EBS, what is this ointment do?
What is the name of the ointment?
Thank you,
Irena (Israel)
it is online at: newcoteatree@telus.net
You have created a wonderful support system for EB and I greatly appreciate this as I suffer from this disease as well. I am hoping to transfer my research career into studying this disease but am actually not well enough informed as to who is doing the research in Ontario. Could you give me a potential list of research facilities studying this for me? I did hear of some work being done at Sick Kids in Toronto but haven’t heard much about them lately.
Thank you very much for your time and the time you take to make people aware of our discomfort.
Have a wonderful weekend,
Cat McFadden
try SULFORATHANE OINTMENT AND CAPSULES!! it works for me…….good luck….barry
Dear Berry,
What is the website that we can by this ointment?
Thank you,
awish you all the best