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Resources Center

DEBRA Canada fact sheet

EB fact sheet

Nutrition for babies with EB

The Care of the New Baby with EB Initial Information
By Jacqueline Denyer

English         Dutch …….     .Italian           German

French ….  ..Norwegian       Finnish         Spanish

Hospital Care of Patients with EB

English ……Russian

The Physician’s Role in Treating EB

English.….. Russian

Care of the Newborn with EB

English ……Russian

Documents in Turkish

Türkische Broschüre

Türkische EB türkçe hastalar için

BOOKS

Life with Epidermolysis Bullosa (EB)

Etiology, Diagnosis, Multidisciplinary Care and Therapy by Jo-David Fine, Helmut Hintner (Eds.)

You can also order at Amazon.com

Epidermolysis Bullosa

Clinical, Epidemiologic, and Laboratory Advances and the Findings of the National Epidermolysis Bullosa Registry

by Jo-David Fine, Eugene A. Bauer, Joseph McGuire, Alan Moshell (Eds)

ARTICLES

By clicking here you will find numerous articles on EB from such journals as Dermatology Nursing, Skin & Allergy News, Science News, Journal of Drugs in Dermatology, and many other sources including newspaper articles (you can get a free trial)