Dystrophic Epidermolysis Bullosa Research Association of Canada

I hope that you will find our website full of useful information, and from this you will get a better understanding of EB.

A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to fulfill the association’s goals.

DEBRA Canada’s goals are:

To be a source of authoritative information for EB families.

To support EB families and give them a sense of community.

To provide funding for the unique medical care needs of EB families.

To heighten awareness of EB in Canada.

To make available funding for research in the hope that there will one day be a cure for all forms of EB.

While the largest group of DEBRA Canada’s members and volunteers are located in Southern Ontario, our membership crosses Canada from coast to coast. If you have EB or know someone who does, please subscribe – or encourage them to suscribe – to our mailing list. You will receive the association’s newsletter, which is full of current, practical information, and events announcements. We need to know you are out there. We want to help.

Click here to sign up for our Newsletter today

If you wish to learn more about DEBRA Canada, please email any member of the Board or me. We welcome your involvement whether through local fund-raising, organizing children’s events or by joining our Board of Directors.

Together, we can make DEBRA Canada a stronger organization that will increase awareness, support EB families coping with this challenging disease, and strive to find a cure.

Sincerely,

Jay Wilson

President, DEBRA Canada