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Welcome and thank you for visiting the DEBRA Canada website. Here you will find information on Epidermolysis Bullosa – the most painful condition you’ve never heard of.

Join our DEBRA Canada supporter database today!Click here to receive newsletters and emails and receive information related to our EB Ambassadors, fundraising events, EB news and more!

DEBRA Canada President and Patient Ambassador Jonathan Pitre Featured on TSNTina and Jonathan photoWe are happy to report that last week our DEBRA Canada President Tina Boileau and her son Jonathan Pitre were featured in an amazing news feature entitled “The Butterfly Child – an original TSN broadcast”. Click here to view and share the video!

TSN Butterfly  Child Image
An Overwhelming Response… Donations, Words of Encouragement & More!

As a result of recent media coverage, DEBRA Canada has received thousands of emails, donations, and an outpouring of support from around the world! Tina, Jonathan and the DEBRA Canada Board of Directors would like to thank EVERYONE who donated and sent kind words of encouragement.

Please note, we are working hard to reply to all the messages sent, but it may take us a bit longer than expected, as there are so many to reply to.  If you would like to send a letter to Tina and Jonathan, please feel free to send it to the DEBRA Canada address: 1500 Upper Middle Rd, Unit #3, PO Box 76035, Oakville, ON, L6M 3H5, CANADA.  We will ensure your message is delivered.

About Personal and/or Crowd Fundraising Pages such as GoFundMe etc.

Unfortunately, DEBRA Canada has no way of guaranteeing that dollars raised via GoFundMe or other online personal fundraising efforts will reach Jonathan or DEBRA Canada.  DEBRA Canada does NOT endorse ANY personal fundraising pages. To ensure your donations are given directly to DEBRA Canada (to benefit Jonathan Pitre and other EB families) please donate here:

Or, to make a donation in honour of Jonathan (Jonathan’s EB Wish Fund), please donate here:

Donations made on the DEBRA Canada website (or sent via cheque to the DEBRA Canada mailing address listed above) will receive an official tax receipt from DEBRA Canada.


Our next fundraising and awareness event – DEBRA Canada Golf Charity Classic takes place on Tuesday, July 7, 2015 at Peninsula Lakes Golf Course.  We are currently registering players for this fun-filled event. Click here for details.

Click here to learn more about how you can help us raise awareness click here.

Thank you for taking the time to learn more about EB!