DEBRA Canada knows that we all want to give our loved ones the very best of care. The costs associated with Epidermolysis Bullosa can be challenging at times, and the health insurance in our... READ MORE
DEBRA Canada is a voluntary, registered, non-profit organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB) and to increasing Canadians’ awareness of this challenging disease.
Thank you for visiting the DEBRA Canada website. Here you will find information on Epidermolysis Bullosa
– the most painful condition you’ve never heard of.
Tara Shannon's new single "Butterfly Child" (feat. North Easton), coming soon to iTunes! Butterfly Child (100% of proceeds to benefit Jonathan Pitre & debracanada.org) READ MORE
We are happy to report that on April 13, 2015 our DEBRA Canada President Tina Boileau and her son Jonathan Pitre were featured in an amazing news feature entitled “The Butterfly Child – an... READ MORE
Unfortunately, DEBRA Canada has no way of guaranteeing that dollars raised via GoFundMe or other online personal fundraising efforts will reach Jonathan or DEBRA Canada. DEBRA Canada does NOT endorse ANY personal fundraising... READ MORE
EB Ambassador Wish Campaign – Help our Butterfly Ambassadors Spread their Wings! We are highlighting DEBRA Canada Ambassadors to help spread awareness and educate Canadians to the daily struggles and amazing perseverance it... READ MORE
People with Epidermolysis Bullosa (commonly referred to as EB) are born with an extremely rare genetic condition making their skin as fragile as a butterfly’s wing. Those affected live with constant pain and... READ MORE