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Welcome

DEBRA Canada is a voluntary, non- profit registered charitable organization dedicated to providing support for families affected by Epidermolysis Bullosa (EB), and to heighten awareness across Canada around this challenging disease. Read more about our mission and purpose click here.

Click here to become a member and subscribe to our Newsletter and eblasts. We will keep you updated regarding EB, our support programs and fundraisers.

Special Meeting of Members – Saturday October 4, 2014…

DEBRA Canada members are invited to attend a Special Meeting of Members which will be held on  October 4, 2014 at 2 p.m. for the purpose of approving the continuance of the Corporation under the new federal not-for-profit corporations legislation, the Canada Not-for-Profit Corporations Act, and the new operating by-law of the Corporation (to replace the existing by-law), and any such other business as may properly be brought forth before the meeting. To view the meeting invitation click here.

Support For Our Member Families.

Are you or a loved one directly affected by EB? DEBRA Canada is here to assist you with any questions. Our website has an abundance of information for EB care and support for EB families, including our MEDICAL/FINANCIAL ASSISTANCE PROGRAM. The costs associated with Epidermolysis Bullosa can be challenging at times and health insurance in our provinces and territories do not necessarily cover ALL expenses associated with EB. The Fund was implemented to assist our EB member families with financial assistance… To learn more click here.

Join Us In Making a Difference!

One of our on-going challenges and initiatives is to raise awareness of EB in our communities and across Canada. There are many ways you can make a difference:

1.     Sign up to become a DEBRA Canada Volunteer – we have many projects happening throughout the year and are always seeking volunteers to help. If you want to make a difference, becoming a volunteer is a great way to start. To register, please email our Project Coordinator/Administrative officer at ehoyos@debracanada.org

2.   Organize an awareness or fundraising event! We can help you with ideas and materials to help promote a local event. Contact our Director of Fundraising at:cthompson@debracanada.org

3.  Make a donation or an honorary gift for any occasion, such as a birthday or anniversary. To make a gift donation click here

4.   Purchase our DEBRA Canada wristbands. Show your support by purchasing and wearing the “I Support DEBRA Canada” silicone wristbands. Your purchase supports our programs and services. Visit our online store to view other promotional merchandise.

5.    Help us increase EB awareness – send 10 friends to join our Facebook page or to follow us on Twitter.

Upcoming Events

EB Awareness Week, Paintball Fundraiser & More…

EB awareness week is the last week of October 25-31, 2014. Check back for more details on our upcoming initiatives.

SAVE THE DATE:  DEBRA Canada’s 3rd Annual Paintball event will take place November 8, 2014. Details to be posted soon on our website, so check back for details. To learn more about how you can spread EB awareness, participate in an upcoming event or host your own awareness event, please contact debra@debracanada.org.

Thank you for taking the time to learn more about Epidermolysis Bullosa and DEBRA Canada!

 

EB Ambassador Program LAUNCHED! The Future of Treatments for EB!