On behalf of the DEBRA Canada Board of Directors, I welcome you to the DEBRA Canada website! DEBRA Canada has many exciting initiatives on the horizon. We are delighted to have been the host of the 2012 DEBRA International Congress in Toronto. Our Board is pleased to announce that we are launching new programs: an EB infant care kit to be made available to all new parents who request it, and comprehensive information packages for dermatologists and neonatal intensive care units (NICU’s) across Canada. New fundraising events are happening this year – you can expect to see great FUNdraisers happening at least FOUR times in 2013. Sign up early for those because they will fill up fast! Email us at email@example.com with any questions you may have!
Here’s how YOU can make a Difference!
One of our ongoing challenges and initiatives is to raise the awareness level of EB in our community and nationwide. If you would like to help us raise EB awareness, there are many ways you can make a difference:
1. Sign up to become a DEBRA Canada Volunteer – we have many projects happening throughout the year and we are seeking volunteers to help. If you want to make a difference, becoming a volunteer is a great way to start. To register as a volunteer, email our Administrative Assistant at firstname.lastname@example.org.
2. Give an honorary gift in lieu of a traditional gift (i.e. during the holiday season, or for any occasion, such as a birthday or anniversary). Make a donation to DEBRA Canada in honour of a loved one. Your loved one will receive notification of your wonderful tribute. To make a gift donation, click here.
3. Purchase our DEBRA Canada Fundraising Wristbands – show your support today by proudly wearing the I Support DEBRA Canada silicone wristbands. Proceeds from this purchase help EB families who have requested support from our Assistance Fund. Click here to purchase your wristbands.
We look forward to hearing from you, anytime… and we hope you will join us at one of our upcoming fundraising events! We will publish a new report on the status of EB research here very soon (from DEBRA International with information from the EB2012 research conference). And, if you have not done so, please sign up for our Newsletter to get the latest on what’s happening at DEBRA Canada!
President, DEBRA Canada
|EB Ambassador Program LAUNCHED!||The Future of Treatments for EB!|