On behalf of the DEBRA Canada Board of Directors, I welcome you to the DEBRA Canada website!
DEBRA Canada has many exciting initiatives on the horizon for 2014. Our Board is pleased to announce that we are launching new programs: an EB Nurse program expected to launch by April 1, an EB Patient Care Kit available to all parents and patients who request it, and comprehensive information packages available for dermatologists and neonatal intensive care units (NICU’s) across Canada.
New fundraising events are happening this year – you can expect to see great FUNdraisers happening at least FOUR times in 2014!
New Media Coverage from Global TV (BC)
Recently, a new EB family from Prince George, BC, was highlighted on Global TV. Our thoughts and prayers go out to the Fell family and to their son, Shea. To watch the recent news video on their story… click here.
Here’s how YOU can make a difference!
One of our ongoing challenges and initiatives is to raise the awareness level of EB in our communities and nationwide. If you would like to help us raise EB awareness, there are many ways you can make a difference:
1. Sign up to become a DEBRA Canada Volunteer – we have many projects happening throughout the year and we are seeking volunteers to help. If you want to make a difference, becoming a volunteer is a great way to start. To register as a volunteer, email our Marketing/ Administrative Coordinator at email@example.com.
2. Give an honorary gift in lieu of a traditional gift (i.e. during the holiday season, or for any occasion, such as a birthday or anniversary). Make a donation to DEBRA Canada in honour of a loved one. Your loved one will receive notification of your generous tribute. To make a gift donation, click here.
3. Purchase our DEBRA Canada Fundraising Wristbands – show your support today by proudly wearing the I Support DEBRA Canada silicone wristbands. Proceeds from this purchase help EB families who have requested support from our Medical Assistance Fund. Click here to purchase your wristbands and visit our online store where we have other promotional merchandise.
4. Help us increase EB Awareness –send 10 friends to join our Facebook page or to follow us on Twitter.
We look forward to hearing from you anytime… and we hope you will join us at one of our upcoming fundraising events! We will publish a new report on the status of EB research here very soon (including global information from DEBRA International).
President DEBRA Canada
|EB Ambassador Program LAUNCHED!||The Future of Treatments for EB!|