Our Blog

Raquel shares her journey about being happy despite EB.

Hear from an EB Mom about the adventures that come with loving and caring for someone with EB.

Sarah Sweeney talks about self acceptance and providing inspiration in light of EB.

Ross Rheaume shares the outsider's perspective of understanding EB.

Novelette Munroe shares how writing and community have helped her achieve goals despite EB.

Noémy Pitre shares what it's like growing up in an EB home.

Natalie Buchanan has EB Simplex, but won't let that stop her!

Micheline Boileau-Bougon story with EB as Jonathan Pitre's godmother.

My name is Adrienne, my daughter Izzy is two and a half years old and was born with Epidermolysis Bullosa Simplex Dowling Meara. When we first re...

Evan is an animal-loving, breakdancing, Pokémon-catching, piano-playing eight-year-old boy who loves to eat steak and calamari. He also has EB.

Jonathan Pitre's own story about battling EB.

Cierra is an EB Ambassador who focuses on perserverance.